ENGAGE, EDUCATE, ENERGIZE
About the SICKLE CELL FOUNDATION OF GEORGIA, INC.
Sickle Cell Foundation of Georgia, Inc., is a non-profit organization tax exempt under section 501(c) of the Internal Revenue Service code.
Year Founded: 1971
Founders: Dr. Delutha H. Kinig and Dr. Nelson McGhee Jr.
Mission Statement: The mission of the Sickle Cell Foundation of Georgia, Inc., is to engage, educate, and energize the community to improve the quality of life for people affected by sickle cell disease.
The Foundation offers a host of ever-evolving programs for children, adults, and families that are designed to help meet core objectives. The Foundations’ summer camp — Camp New Hope, for special needs youth inspires confidence and independence; workshops for physicians and healthcare workers advocates for appropriate patient care; teen retreats help transition patients from pediatric to adult medical care. To find out how you can get involved, contact the Foundation today at 404-755-1641.
Sickle Cell Road Race/Walk
The annual 7k run/walk is the Foundation’s largest community event. This important fund and friend-raiser enlightens the community about sickle cell anemia and sickle cell trait.
Mobile Health Unit
Our testing team of educators and technicians travels year-round throughout Georgia providing education, testing and follow-up counseling. The Mobile Health Unit conducts testing at clinics, health fairs, malls, military bases, and colleges and schools. Contact the Clinical Services staff at firstname.lastname@example.org.
The Foundation works extensively in communities throughout Georgia to provide educational and disease detection opportunities. Foundation teams participate regularly in Health Fairs, educational forums, and special events distributing literature and scheduling appointments for follow-up. Outreach is conducted in public school systems, on college campuses, military bases, at clinics and more.
Educators and certified counselors engage the community in a variety of settings — hospitals and events, as well as aboard the Foundation’s Mobile Health Unit. On board the Mobile unit, professional staff conduct confidential screenings and privately counsel interested participants. Blood samples are typically delivered to the certified laboratory for processing and interpretation. Persons are notified of test results by email typically within weeks.
Georgia Newborn Screening Program
Because early diagnosis increases a child’s survival rate, under Georgia law, all babies are tested at birth for a red blood cell disorder (abnormal hemoglobin). The Foundation provides counseling to parents whose newborns have abnormal hemoglobin.
Camp New Hope
This is the Foundation’s weeklong, residential summer program for children ages 6 to 17 who have either sickle cell disease or the trait. Located in scenic Fort Yargo State Park in Winder, Ga., the camp provides a fun but educational, respite where young sickle cell patients can “just be kids.” With constant medical supervision on site, campers are free to engage in traditional camp activities like hiking, swimming and zip lining. Campers are taught to accept their limitations, develop realistic attitudes about their capabilities so that they maximize their potential, and become more confident and self-motivated.
Advocacy is intended to improve circumstances and support research that benefit clients with Sickle Cell. The goal is to help clients live as close to a normal life, as possible and to support initiatives that explore cures, as resources allow. Research projects involve Pharmaceuticals, Treatments and Blood Donations with leading local and national institutions. Partnerships are on-going with the Mexican Consulate, Georgia Tech, Maternal and Child Health, Emory University, and others. The Foundation also advocates for practical community needs such as Employment Assistance, Training, Career Counseling, and a host of workforce collaborations.
Sickle Cell Advocacy
The Foundation advocates for the sickle cell community on a local and national basis. Each January, patients, and supporters rally during Sickle Cell Day at the Georgia Capitol. This one-day event connects patients, their families, and providers with Georgia lawmakers.
Later in the year, the Foundation sends a delegation to Washington, D.C., to participate in the Sickle Cell Disease Association’s Capitol Hill Day, where they advocate for increased funding to support treatment, research, and access to quality care.
The Foundation regularly hosts educational programs for patients and providers. Sessions typically include adult and youth tracks. Each year the Southeastern Sickle Cell Symposium takes center stage. This one-day forum showcases the latest research and treatment information-engaging patients, families and providers in both large and small settings. Patients also serve on panels to share personal experiences with medications, wellness tips and general advice. The Foundation also hosts physician education workshops to better acquaint providers with sickle cell disease.