“Get Connected” is a Patient Powered Registry designed to create a way for individuals with sickle cell and sickle cell trait to receive information about current advocacy initiatives, treatment, therapies, and research studies.
“Get Connected” collects and stores basic demographic information and allows registered persons with sickle cell to keep their medical history secured and up-to-date in one electronic location. It provides a continuous stream of newsletters, community forms, and other information about sickle cell. A national patient registry where everyone can actively stay up-to-date on the sickle cell community and maintain their medical histories will allow the sickle cell community to become stronger and more unified in efforts to build better health care solutions across the country. Input from registered people with sickle cell will help to identify critical needs and form a voice to support vital research; and lead to the development of much needed care improvement guidelines.
Aggregate level (no names or other identifying information) data from entries made by individual with sickle cell will provide insights on the number people currently are living with sickle cell disease in the United States. This critical information can then be used to request substantial funding support for research and treatment – bringing us another step closer to finding a cure.
TAKE CHARGE OF YOUR HEALTH AND REGISTER TODAY, Click Here. All information is stored on a secure database and all identifiable health information entered into the registry is protected as required by the terms of the Health Insurance Portability & Accountability Act (HIPPA). No personal health information will be shared with anyone without your permission.
For more information about our Community Health Workers Click Here:
Asabi Jeter, Metropolitan Atlanta 404-680-8312; firstname.lastname@example.org
The Sickle Cell Foundation of Georgia and state partners are hitting the streets to improve the lives of people living with Sickle Cell Disease.
With the support of funding from the U.S. Health Services Resource Administration (HRSA), SCFG is partnering with the Sickle Cell Disease Association of American (SCDAA) to send community health workers (CHW) into the community to help adolescents and adults who have sickle cell disease but do not have a regular healthcare provider for sickle cell find a medical home. CHWs are community members who help individuals with sickle cell adopt healthy behaviors. The CHWs are selected from the community and are trained and certified to service the sickle cell community. They provide services to improve the health outcomes of individuals with sickle cell and help them enroll in a new national sickle cell registry, “Get Connected”. Click Here for more information on “Get Connected”. CHWs conduct community outreach, including home visits, to promote, maintain, and improve the health of individuals living with sickle cell disease.
In addition to serving individuals in Metropolitan Atlanta, SCFG is partnering with the Central Alabama Chapter of SCDAA, the Sickle Cell Foundation of Greater Montgomery, and the U. S. Virgin Islands Department of Health to provide CHWs in Birmingham, Montgomery (Autauga, Butler, Chambers, Coffee, Crenshaw, Elmore, Lowndes, Montgomery, and Tallapoosa Counties); and St. Thomas, St. John and St. Croix.
Our new CHWs bring years of experience with sickle cell disease, sickle cell trait, and community outreach. They are ready to provide assistance to anyone in the community with sickle cell or sickle cell trait.
Asabi Jeter (Metropolitan Atlanta)
As a communications specialist, Asabi Jeter worked in the television and telecommunications industry for ten years. Since her retirement from communications, she returned to school to pursue a master’s degree in public health with a focus on sickle cell and community outreach. She chartered two sickle cell support groups, one in Georgia and one in Texas to lay a foundation for others to build on. Her passion is sickle cell disease, living the life of someone with sickle cell disease and helping others. Asabi’s mantra is “Live life. Don’t let life live you. Every day is a new life day.” She enjoys world travel and reading. Contact Asabi @ 404-680-8312 or send an email email@example.com
Sickle Cell Foundation of Georgia, Inc. Praises Volunteers
The Sickle Cell Foundation of Georgia, Inc. recognized over 100 of its faithful volunteers recently at the annual appreciation event. Each of the volunteers received a gift bag and certificate of appreciation for their support to the Foundation throughout the year.
The Foundation also announced its coveted Volunteer of the Year awards for services above and beyond the call of duty. Karen Hughes was named Volunteer of the Year along with Dr. Tom Adamkiewicz who received a standing ovation. A plaque was also presented to J.U.G.S. of Atlanta for Volunteer Organization of the Year.
Hughes, a long-time volunteer, was recognized for her participation at every one of the Foundation’s 2015 events.
Dr. Adamkiewicz, a pediatric hematologist, was recognized for the outstanding volunteer service he provided as Medical Director for Camp New Hope. “Dr. Tom” as he is affectionately known, provided 24-hour medical coverage to ensure the well-being of campers over the week.
J.U.G.S. International, Inc. (Justice-Unity-Generosity-Service, International, Incorporated) was honored for its years of charitable service to the Foundation.
The reception was held at Jackson Memorial Baptist Church, where Rev. Dr. Gregory Sutton is senior pastor. Over 200 guest attended including volunteers, their family and friends and SCFG staff. SCFG supporter and philanthropist Gail Aaron, representing the Aaron Trust Foundation served as event sponsor.
Evening highlights included the introduction of the new Sickle Cell Poster Child, Eliezer Washington, and donation of over 25 lap quilts from volunteers of the Adamsville Green Senior Community.
Sickle Cell Foundation of Georgia, Inc.
Poster Child 2015-2017
The Sickle Cell Poster Child for 2015-2017 is 10-year old Eliezer Washington. He hails from Suwanee, Georgia and is a fifth grader at Walnut Grove Elementary School.
Eliezer is the youngest son of Tandua and Gershom Washington Sr. and has one sibling, Gershom Washington Jr.
“Ieshea Thomas, a Chicago woman, is the first adult to be cured of sickle cell disease with a chemotherapy-free procedure at UI Hospital.” Click HERE to read the entire article….
As is the reality for many children with Sickle Cell Disease, extended hospitalizations are far too common. Recently while hospitalized, 11-year old Tian discovered that toys and games for the hospitalized children had been stolen. Tain decided to launch a campaign to raise money to replace the games and toys by selling t-shirts. His campaign is designed to not only generate funds but to raise awareness about Sickle Cell Disease. His goal is to sell 50 shirts for “Raising Funds to Donate Toys to Children with Sickle Cell who have Extended Stay at the Children’s Hospital”.
You can help Tain reach is goal. Follow this link www.booster.com/stopthepainsicklecell and donate or purchase a t-shirt. You can also help him by sending the link to your family and friends and posting on Facebook.
Project Healthy Grandparents (PHG) is a FREE community service research project of the Byrdine F. Lewis School of Nursing and Health Professions at Georgia State University. Our mission is to improve the quality of life for families in which grandparents are raising their grandchildren in parent-absent homes within DeKalb and Fulton Counties.
Request for Services – To Download A Copy of Request For Services, Click HERE